Thursday, October 27, 2011

Embracing Perspective

Our family has had a long week processing the fact that our daughter has juvenile scoliosis.  I'm not proud of how hard it has been for me to pull it together.  I tried to hide it, but I kinda lost it when I saw her first x-ray--her contorted spine in black and white.  I am trying to keep things in perspective.  I keep telling my Sweet Girl we need to be grateful for the treatment options that are available, even though those options--bracing 23 hours a day and one or more surgeries--sound intimidating.  It's amazing how fast our life has changed.

Getting information has been crucial.  Of course, there is too much and yet somehow not enough available online.  It was comforting for me to find another blog detailing the family experience with this condition.  It made me feel like we weren't alone--which is exactly why I wanted to put our story here.  I hope that we will be able to give others hope and perspective.

After a long day traveling to see the specialist, we came home and tried to do something normal.  We were baking cookies and making a new recipe for dinner when, while snitching cookie dough, my Sweet Girl brought up her fears for the anesthesia she needs for her MRI.  As I tried to reassure her, I realized life just wouldn't be normal for a while.


Embrace the camera today, guys.  Get your little ones and hold them tight.

9 comments:

Wendy said...

What a super sweet picture on a day you will never forget. Prayers for you and your beautiful girl!

Ali said...

What an amazingly emotional picture. Thanks for sharing!

Ruthie Hart said...

I love this picture, will be praying for you guys! visiting from #embracethecamera

Ashley said...

what a strong image to capture this time in your lives. your family will be in my thoughts. wishing you the best!

Erica! said...

This is a beautiful picture. Lifting your family up in prayer. (I'm Erica, & visiting from embrace the camera).

katie said...

I am so sorry for the obstacle you are facing. I am praying for your daughter's fears to be replaced by peace. I love the photo. You captured a beautiful moment.

Emily Kate said...

This picture is beautiful and sooo sweet. Frame this baby and hang it up!

Brandi said...

Thank you so much for your prayers, we appreciate every one.

Dianna said...

Aw....sweet post.
I've never shared this on my blog, but my son was diagnosed with MS in January, 2008 (he was 28 at the time). He does self-injections three times a week, and THANKFULLY, has had no more episodes since the original, which caused him double vision for about 2 weeks.
There are no words to describe the feeling of a parent when their child is sick, in ANY way.
What a relief to know that the brace is helping your daughter!